Monday Morning:
State of the Science Sessions
Identification of Disabilities: The Linguistic and Cultural Validity of the CSHCN Screener
Stephen Blumberg, PhD
Community-based Inclusive Recreation: Are Children with Disabilities Having Fun Yet?
Dot Nary, MA
Adolescent Transition
Renee Jenkins, MD
Where can Opening Doors take us next?
Judith Palfrey MD, Susan Foley PhD, Abdirahman Yusuf, Deborah Leuchovius
Monday Afternoon:
Presentations from the Field
Panel 1A - Inclusive Recreation
Out of the Box-Out of the Clinic: The Outdoor Sensory Experience
Susan Orloff, OTR/L
Development and Implementation of
Community-based Sports/Recreational Programs for Youth with Severe Disabilities
Joyce Stout, RN
Project Adventure: Lessons Learned
Emily Davidson, MD, Laurie Glader, MD
Panel 1B - Transition Planning and Programs
Assessing Intermediate Outcomes
of Youth with Disabilities
Mustafa C. Karakus, PhD, Lynn Elinson, PhD, William D. Frey, PhD, Richard L. Horne, EdD
Person-Centered Planning
and the Transition Process
Kristie Melkers
A Residential Schools Transition Program
What It Is - What It Is Not
Kathy Hegemann
Panel 1C - Improving Services for Children and Youth with Special Health Care Needs
Children with Special Health Care Needs
in Public Schools
Maxine B. Freund, EdD, Chandra Keller Allen, EdD
WISHES: Working Initiative for Special Health Education Services
Kitty O'Hare, MD, Manisha S. Patel, MD
Supported Employment: What Students, Families, and Transition Specialists Need to Know
Monica Simonsen, Sherril Moon, PhD, Debra Neubert, PhD
Adolescent to Adult Transitions: Trepidation or Triumph?
Penny Hauser-Cram, PhD
Panel 2A - Screening and Early Identification
Building partnerships and alliances to address challenges in the early identification, assessment, service coordination and provision of services for young children with autism spectrum disorder (ASD) and related disabilities
Georgina Peacock, MD, MPH, Sue Lin
Swaying Systems and Impacting Lives
Juanona Brewster, MDiv, MTS, MJ, Scott Allen, Anita Berry, Dana Brazdziunas, MD
Project Screening: Lessons Learned
Alison Schonwald, MD, Kelly Horan, MPH, Noelle Huntington, PhD
Panel 2B - Educational and Transition Planning for Youth with Sickle Cell Disease
Educational and Transition Planning for Youth with Sickle Cell Disease
Karen Wills, PhD, Stephen Nelson, MD, and Osita Nwaneri, MD
Panel 2C - Working with Underserved Communities
Early detection and intervention services for infant hearing loss in South Africa: a Pilot Program
Alison Hart, MPH, Claudine Storbeck, PhD, De Wet Swanepoel, PhD
Accessibility and barriers of services for children with developmental disabilities in underserved communities: implications for the Asian Pacific Islander American populations
Dian Baker PhDc, Michelle Dang, RN, Elizabeth Miller MD, PhD
The Role of Family Organizations in Outreach Support to Immigrant Families of Children with Special Needs
Mercedes Rosa, Diana MTK Autin
Tuesday Morning:
Community Based Participatory Research Workshops
Integrating Different Sources of Knowledge into a Research Study: The Challenge and Promise of Community-based Participatory Research
Abdirahman Yusuf, Rich Robison, PhD, MDiv, Elizabeth Bostic, Susan Foley, PhD
Four Community Experiences with Research: Haitian, Chinese, Ethiopian, Asian/Pacific Islander Perspectives on Knowledge Creation
Renald Raphael, MD, Binyam Tamene, Joseph Wu, Carolyn Leung
Opt4College: Youth-centered Participatory Action Research In the Design of an On-line Educational Transition Curriculum
Jadine Yarde, Javier Serrano, Myra Rosen-Reynoso, PhD, Veronica Palmer-Segal, Matthew Kusminsky, Stelios Gragoudas, PhD, Keith Jones
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Opening Doors is a five-year Rehabilitation Research and Training Center funded by
NIDRR/U.S. DOE. Partners: ICI, Children’s Hospital Boston, UMass Boston, Mass.
Consortium for Children with Special Health Care Needs, PACER, and Opening
Doors community partners. The conference is sponsored by NIDRR, the HSC
Foundation, MCHB, and the American Academy of Pediatrics.
